2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers

As many of you know, the NIA, in conjunction with the Department of Health and Human Services as part of the National Alzheimer’s Project Act (NAPA), planned to host the second National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers on March 24-25, 2020. Unfortunately, the event was canceled per COVID-19 physical distancing guidance. In lieu of hosting an in-person event, the NIA will host a 2020 Dementia Care, Caregiving, and Services Research Summit Virtual Meeting Series in Summer 2020. 

This series will include three meetings, with research presentations, panelist remarks, sharing of the draft research gaps and opportunities, and moderated discussion/Q&A. These draft gaps and opportunities, developed by the Summit Steering Committee with input from stakeholder groups and organized into six themes, are intended to identify important potential areas for future research in the fields of dementia care and caregiving.

The dates of the Summit Virtual Meetings Series are:

  • Summit Series Virtual Meeting 1

Friday, July 10, 2020, 1:30-4:30 pm EDT

The first virtual meeting will cover the welcome, setting the stage, Impact of Dementia (Theme 1), and Participation of Persons with Dementia and their Caregivers in Research (Theme 4).

  • Summit Series Virtual Meeting 2

Thursday, July 21, 2020, 1:00-4:30 pm EDT

The second meeting will cover Long-Term Services and Supports in Home, Community, and Residential Care Settings for Persons with Dementia and their Caregivers (Theme 2), Services and Supports in Medical Care Settings for Persons with Dementia (Theme 3), and Integration: The Present and Future of Integrated Long-Term and Medical Care.

  • Summit Services Virtual Meeting 3

Thursday, August 13, 2020, 1:30-4:45 pm EDT

The third meeting will cover Intervention Research, Implementation, and Dissemination (Theme 5), Research Resources, Methods, and Data Infrastructure (Theme 6), and Emerging Topics.

The full agendas for all three meetings are now posted online on the 2020 Summit Webpage.

National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers

Registration for the National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers, which will take place on March 24-25, 2020 on the NIH campus, is now open. This Summit will bring together individuals with a variety of backgrounds to identify evidence-based programs, strategies, approaches, and other research that can be used to improve the care, services, and supports of persons with dementia and their caregivers.  The meeting will  include plenary talks, research presentations, discussion panels, and a poster presentation session at this two-day event. For more information on logistics of the Summit, and to register, please visit the summit website

NIH Hosts Webinar on Draft Policy for Data Management and Sharing

On Monday, December 16th, from 12:30—2:00 p.m. ET, NIH will host a webinar on the Draft NIH Policy for Data Management and Sharing, which defines institutional standards for the public reporting of NIH research results and outcomes.  This webinar is an opportunity to provide information on the Trans-NIH draft policy and to answer any clarifying questions on the public commentary process.  As a reminder, NIH is seeking public input on this draft policy through January 10, 2020.