Alzheimer’s from the Frontlines: Challenges a National Alzheimer’s Plan Must Address

Time: November 8, 2011 from 10am to 11am
Location: SVC 203-202 (Capitol Visitor’s Center)
Event Type: congressional, briefing
Organized By: Alzheimer’s Association

The Alzheimer’s Association invites you to a briefing on:

 “Alzheimer’s from the Frontlines: Challenges a National Alzheimer’s Plan Must Address”

 Tuesday, November 8, 2011 from 10 A.M. to 11 A.M.

SVC 203-202 (Capitol Visitors Center)

 Please join us for a Congressional Briefing unveiling an important new report, “Alzheimer’s from the Frontlines: Challenges a National Alzheimer’s Plan Must Address.” This report offers insights and perspectives from the Alzheimer’s community on ten critical challenges the first ever National Alzheimer’s Plan must address. The National Alzheimer’s Project Act (P.L. 111-375), unanimously passed by Congress last year, requires the creation of a National Alzheimer’s Plan to address the rapidly mounting Alzheimer’s disease crisis and will coordinate Alzheimer’s disease efforts across the federal government.

Building on the Association’s commitment to provide a platform for those directly affected by Alzheimer’s, the Association and its more than 70 chapters nationwide hosted over 130 input sessions throughout the country, allowing thousands of individuals to speak on behalf of all Americans counting on this effort to change the trajectory of this devastating disease for the millions affected today and the millions more at risk tomorrow. “Alzheimer’s from the Frontlines” provides a rare and unique window into the real, unrelenting challenges the disease forces on families year after year.

Speakers include:  

  • Harry Johns, President and CEO, Alzheimer’s Association
  • Robert Egge, Vice President of Public Policy, Alzheimer’s Association
  • Garrett Davis, Alzheimer’s Association Ambassador
  • Senator Susan Collins (R- ME) (invited)
  • Senator Mark Warner (D-VA) (invited)
  • Senator Richard Burr (R-NC) (invited)
  • Senator Debbie Stabenow (D-MI) (invited)

Please RSVP to Tonya Buford at [email protected]

The Alzheimer’s Association is the world’s leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer’s. For more information, visit www.alz.org

November 18th Briefings: “Leading the Way on AD and Aging Research”

Posted by Kimberly Acquaviva, PhD, MSW on November 10, 2010 at 12:22pm

Dear Friends of the National Institute on Aging,

I wanted to let you know about an upcoming event that may be of interest to you, your colleagues, and your constituents. On Thursday, November 18th, Friends of the NIA is co-sponsoring two educational briefings (one House and one Senate), titled “Leading the Way on Alzheimer’s Disease and Aging Research: A briefing about the vital work of the National Institute on Aging. The event is jointly sponsored by the Alliance for Aging Research, Alzheimer’s Foundation of America, Cure Alzheimer’s Fund, Friends of the NIA, and Leaders Engaged on Alzheimer’s Disease (LEAD). Links are provided below for the flyers for both the House and Senate briefings, listing time and location as well as confirmed speakers.

Please feel free to disseminate these flyers through your listservs, websites, etc. Any assistance you could provide in helping to spread the word about this exciting event would be greatly appreciated. To RSVP for either briefing, please send an email to [email protected] confirming your plans to attend.

Best regards,
Kim

Invite3

InviteHouse3

Leading the Way on Alzheimer’s Disease and Aging Research: A briefing about the vital work of the National Institute on Aging (NIA)

Time: November 18, 2010 from 1pm to 2pm
Location: Russell Room 428A
City/Town: Washington, DC
Event Type: educational, briefing, (senate)
Organized By: Please RSVP to [email protected]

Friends of the NIA is co-sponsoring an educational briefing titled “Leading the Way on Alzheimer’s Disease and Aging Research: A briefing about the vital work of the National Institute on Aging.” The briefing is jointly sponsored by the Alliance for Aging Research, Alzheimer’s Foundation of America, Cure Alzheimer’s Fund, Friends of the NIA, and Leaders Engaged on Alzheimer’s Disease (LEAD). The following link will enable you to save and/or print the flyer for the Senate-side briefing:

Invite3

Please feel free to disseminate this flyer through your listservs, websites, etc. Any assistance you could provide in helping to spread the word about this exciting event would be greatly appreciated. To RSVP for the Senate-side briefing, please send an email to [email protected] confirming your plans to attend.

Best regards,
Kimberly Acquaviva, PhD, MSW
Chair, Friends of the National Institute on Aging

FILM: “Alzheimer’s Disease: Facing the Facts”

FILM: “Alzheimer’s Disease: Facing the Facts”

January 20, 2009 at 10pm

WHYY in Philpadelphia (For local listings, go to http://www.tracmedia.com/LOL/alzheimers/) A must-see film!! Narrated by Tony and Emmy award-winning actor Edward Herrmann, Alzheimer’s Disease: Facing the Facts is a new one-hour documentary that examines the personal and societal implicatio…

Organized by John Trojanowski, University of Pennsylvania

NIA-supported Work on Alzheimer’s Featured in Upcoming Film

Posted by Kimberly Acquaviva, PhD, MSW on January 13, 2009 at 8:36am

FoNIA Member John Q. Trojanowski from The University of Pennsylvania sent me this exciting update regarding an NIA-funded initiative:

Two Penn-made public education videos on Alzheimer’s disease and Healthy Brain Aging will air on PBS in early 2009. The two films (“Taking the Steps to Healthy Brain Aging…Learning from Research” and “Shining a Light on Alzheimer’s Disease…Through Research”) were produced with a generous grant from the MetLife Foundation as a collaborative effort by 4 National Institute on Aging (NIA)-funded Alzheimer Centers, the Institute on Aging, the Penn Memory Center and the Center for Neurodegenerative Disease Research. The 2 educational videos are available to the public for free through the NIA-supported Alzheimer’s Disease Education And Referral (ADEAR) Center (www.niapublications.org/adearorder/shopdisplayproducts.asp) and the can be viewed on line at the links below:

http://www.nia.nih.gov/Alzheimers/Publications/shininglight.htm

http://www.nia.nih.gov/Alzheimers/Publications/brainaging.htm

To enable broader public access to these films, MetLife subsequently supported the integration of these two films into one entitled “Alzheimer’s Disease: Facing the Facts” that currently is poised to reach >80% of all TV markets in the country including WHYY in Philadelphia.

Below are the airtimes for this film on WHYY.

WHYY Main TV12 Channel Tues, 01/20/2009 10pm
WHYY Main TV12 Channel Sun, 01/25/2009 3:30am
WHYY Main TV12 Channel Sun, 01/25/2009 6pm
WHYY Digital Y Info Channel Thurs, 01/22/2009 10pm

To order FREE copies of the two DVD’s (“Taking the Steps to Healthy Brain Aging…Learning from Research” and “Shining a Light on Alzheimer’s Disease…Through Research”), send an email to [email protected] or call Vijay Shanmugamani at ADEAR (1-800-438-4380) with:
* Name of center, contact person (with phone number), and shipping address
* Quantity of DVDs requested (e.g., 200 Shining a Light on AD, 300 Healthy
Brain Aging)

The DVD’s are also available for the public to view or order free at the ADEAR Center Web site (www.nia.nih.gov/alzheimers)